One person out of 2,00,000 suffers from the syndrome and the longevity of life depends on the type of Hunter's a person has, reported The Times of India. As far as Arian is concerned, the doctors have given him another 7-8 years of life.
Born on February 2, 2002, Arian's condition was first detected when a local homeopathic doctor heard wheezing in his heart and thought of a cyst. While consulting subsequent cardilogists, it was revealed that one of Arian's valve is thicker than the other, and this diognosis made their parents visit specialists at the Rabindranath Tagore International Institute of Cardiac Science. After their third visit, paediatric surgeon Biswajit Bandyopdhyay referred him to Apurva Ghosh stating that the problem was not in his heart but somewhere else. It was Ghosh, who suspected the boy to be inflicted with the dreadful Hunter's syndrome, and referred him to Christian College In Vellore. After a 24-hour urine test, it was confirmed that Arian lacked iduramate-2-sulphatate (I2S) enzyme that caused the syndrome.
The mere diagnosis was not the end of the plight for the Chowdhurys as they learnt that treatment is available but was not within their modest earning. To have a way of lessening one's child suffering and not to have a means to get that, must be the hardest possible pain that the couple is enduring from 2006.
In our country where crores of rupees are siphoned off by politicians due to one scam or the other, life for the Chowdhurys is unfair. However, Sib Shankar Chouwdhury is fighting the battle till the end, and has asked for help from every corner. He has written to the drug manufacturer Shire US Manufacturing Inc., and to the state government but so far there has been no help.
Mamata Banerjee, who felicitated not long ago some very rich men with gold chains and medals and what nots, doesn't seem to have sympathy for a geniune case. Where is she and why isn't something being done for Arian, whose bones have become stiff and he is unable to move his fingers or toes? Not only that, the 10-year-old has facial deformity and an enlarged liver. The only way to slow his condition is by injecting the I2S enzyme but the matter rests on the huge amount of money involed. Is Government treating Arian Chowdhury as a commodity better to be disposed off now or later?
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