World Haemophilia Day: "Lighting it up red" to raise awareness
Each year, the World Haemophilia Day is observed on April 17 to raise awareness for bleeding disorders as well as to raise funds and attract volunteers. The observance, started in 1989 humbly in honour of Frank Schnabel's birthday, is now observed in most countries across the globe.
to the initiators of the observance, the World
Haemophilia (WFH), dedicated efforts are required in 'improving the
lives of people with haemophilia and other genetic bleeding
disorders. It educates haemophiliacs and lobbies for improved medical
treatment since 75 per cent of people in the world with bleeding
disorders do not know it and do not receive care.'
a person without haemophilia bleeds, normal levels of clotting
factor, a protein in the blood, causes the blood to clot and stops
the bleeding. However, haemophiliacs have lower levels of clotting
factor in the blood and bleeding continues for much longer periods,
inform medical experts.
WFH has member organizations in 113 countries and official
recognition from the World Health Organization (WHO).
the night of the observance, the tradition of "Lighting it up red"
will be carried out and people in major cities around the world will
light up prominent landmarks in red to show support for the global
bleeding disorders community.