On the occasion of World Hemophilia Day observed every year on April 17, Society for Hemophilia (SHC India) an NGO working at National level organised an awareness program about Hemophilia and its treatment at Northern Railway Hospital, New Delhi
for Hemophilia Care(SHC India) is a national level NGO in the field
of advocacy and to raise awareness the disease and other related
bleeding disorders.It works in partnership with associations,
individuals, government and corporate at central and state level to
facilitate safe, affordable and ethical treatment to persons
suffering with haemophilia.
this occasion Dr. Yogesh Gupta along with Dr. Sabhyata gave a very
informative power point presentation on Hemophila and its related
disorder and how it can be treated. Vijay Kaul, Exe.
Director, SHC India, welcomed all the doctors, patients, families and
caregivers. He explained about the latest and safe available
treatments and how to manage and prevent bleeds. He also encouraged
the “Youth Group” to come forward and empower themselves by
cooperation, support, education which will help community live a
normal life like any normal person.
Hemophilia Day is celebrated each year on April 17 since 1989, in
memory of the World Federation of Hemophilia's founder, Frank
Schnabel. World Hemophilia Day is observed globally as an opportunity
to increase awareness of Hemophilia and other bleeding disorders.
Jha, a very talented young boy with haemophilia, along with his
friends performed an excellent musical program which was enjoyed by
all. “Youth Group “leader Vaibhav Nehra, a CA by profession
working with a national bank, motivated all the young members present
there by telling his own life story. Other members of Youth group
also shared their inspiring stories.
Vijay Kaul explained the benefits of “travel kits” and how it
should be used. The program ended with prize distribution and thank
you note which was followed by lunch.